Living with Idiopathic Inflammatory Myopathy

Physiotherapy. This is recommended for all patients once they have passed the most acute and critical phase of the disease. 

Treatment with bisphosphonates, calcium and vitamin D. This is highly recommended for all patients, particularly post-menopausal women, because of the high risk of osteoporotic fractures.

It is recommended to avoid becoming overweight.

No smoking. 

Avoid alcohol because this is a muscle toxin.

It is advisable to perform aerobic exercise without becoming overexerted and, if possible, to do this in a swimming pool to avoid injury.

In the event that you travel for a certain length of time, it is important to take an updated medical report showing the diagnosis and progression of your illness. You should have all your medication with you and locate a reference hospital in case you require assistance.

Social and emotional support. Some patients require psychological help to overcome the different stages, above all, to accept the illness without blaming themselves and then to live with it, adapting to daily life.